Create accountLogin

Recent searches

No recent searches

Search options

Only available when logged in.
mastodon.green is one of the many independent Mastodon servers you can use to participate in the fediverse.
Plant trees while you use Mastodon. A server originally for people in the EU, but now open for anyone in the world

Administered by:

Server stats:

1.2K
active users

mastodon.green: AboutProfiles directoryPrivacy policy

Mastodon: AboutGet the appKeyboard shortcutsView source codev4.3.7

𝓖𝓲𝓪 𝓜𝓸𝓻𝓪 (she/her)

I’ve diligently worked my entire life to cultivate the grace with which I was not born. Only in granting myself compassion did I truly find it.

Learn more about my journey with and in today’s @Huffingtonpost. I hope it helps someone else find an answer and perhaps hope for the future.

huffpost.com/entry/broken-bone

HuffPostI've Broken My Ankles, Wrists, Elbows And Jaw Many Times. It Took 15 Years To Find Out Why.By Gia Mora
#EhlersDanlosSyndrome#HypermobileEhlersDanlosSyndrome#ChronicPain
Apr 20, 2023, 07:53 PM·Public·Mastodon for iOS
5boosts·5favorites
Public
𝓖𝓲𝓪 𝓜𝓸𝓻𝓪 (she/her)

New research suggests genetic identification for -- .

scitechdaily.com/bending-over-

I have known since 2008 that I have this mutation because it caused such difficulty in my sister's pregnancy. To know that this may be the new diagnostic tool for gives me great hope.

SciTechDailyBending Over Backwards: Vitamin Deficiency’s Surprising Role in Double-Jointedness and EDSScientists have linked hypermobility and related disorders to a folate deficiency caused by a genetic variation, offering new diagnostic methods and treatment possibilities with methylated folate. Tulane University researchers have discovered a possible genetic cause for hypermobility (commonly k
#HSD#Genetics#EhlersDanlosSyndrome
Public
Steffen Christensen

@giamora @Huffingtonpost Oh my friend. I didn't know, it's such a difficult disease. My heart goes out to you, Gia.

Public
𝓖𝓲𝓪 𝓜𝓸𝓻𝓪 (she/her)

@Wikisteff @Huffingtonpost Thank you so much for reading. Together we can cultivate more compassion for everyone!

Public
Joel Kin

@giamora I’m sorry you’ve had such a hard time. My wife has EDS and reading this really helped me understand her experience more deeply. Thanks for writing it.

Public
𝓖𝓲𝓪 𝓜𝓸𝓻𝓪 (she/her)

@foon What a powerful statement to hear! I’m so grateful to hear this face you some insights. Wishing you both the best!!

ExploreLive feeds
About