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ahimsaMore quotes:"Recognising post-exertional malaise is critical, not just for accurate diagnosis but to prevent harm. Pushing through physical activity can worsen the underlying energy dysfunction …""Both Long Covid and ME/CFS are under-recognised, not because they are rare, but because clinicians lack the tools and training to adequately detect the systemic dysfunction they reflect …"<a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PostCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/PostInfection" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostInfection</a> <a href="https://disabled.social/tags/NewZealand" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NewZealand</a>

ahimsa"NZ’s Long Covid blind spot nothing short of a crisis"<a href="https://newsroom.co.nz/2025/04/29/nzs-long-covid-blind-spot-nothing-short-of-a-crisis/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://newsroom.co.nz/2025/04/29/nzs-long-covid-blind-spot-nothing-short-of-a-crisis/</a>"While Long Covid has brought overdue attention to the long-term health consequences of infections, this phenomenon is not new. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has long been recognised as a serious post-infection syndrome. Some people with Long Covid will meet the diagnostic criteria for ME/CFS …"<a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PostCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/PostInfection" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostInfection</a> <a href="https://disabled.social/tags/NewZealand" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NewZealand</a>

Tom KindlonTip: Use the back seat of a car (when stationary) as a place to lie down and rest. Probably not ideal comfort-wise but needs must. I first heard it when someone with ME/CFS used it as a place to lie down at work.<a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longcovid</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

Brian (Stuttering Loudly)What the term “COVID” means to most people: Lockdowns and masks What the term “COVID” means to <a class="hashtag" href="https://bsky.app/search?q=%23COVIDinformed" rel="nofollow noopener noreferrer" target="_blank">#COVIDinformed</a> people: An infectious disease which is caused by the SARS-CoV-2 virus <a class="hashtag" href="https://bsky.app/search?q=%23COVIDisNotOver" rel="nofollow noopener noreferrer" target="_blank">#COVIDisNotOver</a> <a class="hashtag" href="https://bsky.app/search?q=%23COVIDisntOver" rel="nofollow noopener noreferrer" target="_blank">#COVIDisntOver</a> <a class="hashtag" href="https://bsky.app/search?q=%23COVIDStillKills" rel="nofollow noopener noreferrer" target="_blank">#COVIDStillKills</a> <a class="hashtag" href="https://bsky.app/search?q=%23LongCOVID" rel="nofollow noopener noreferrer" target="_blank">#LongCOVID</a>

conscientious objector🇨🇭🪂Gesunken sind indes die Präventionsausgaben. Schweizer Gesundheitskosten sind in 2023 aber insgesamt um 2.4 Prozent gestiegen. 🤡<a href="https://www.srf.ch/news/schweiz/94-milliarden-franken-schweizer-gesundheitskosten-sind-2023-um-2-4-prozent-gestiegen" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.srf.ch/news/schweiz/94-milliarden-franken-schweizer-gesundheitskosten-sind-2023-um-2-4-prozent-gestiegen</a> <a href="https://swiss.social/tags/Corona" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Corona</a> <a href="https://swiss.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://swiss.social/tags/Krankenstand" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Krankenstand</a> <a href="https://swiss.social/tags/Srf" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Srf</a>

FriekeNieuwe dag, zelfde opstelling. My <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> life

Bernd Paysan R.I.P Natenom 🕯️<a href="https://misskey.de/@Rockndoll" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@Rockndoll</a> Oder an <a href="https://mastodon.net2o.de/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a>, und die müssten sich eigentlich pacen, aber dann klappt ja das mit dem Muskelaufbau nicht, also schlucken sie irgendwelche Substanzen gegen die Symptome, und der Körper versagt halt dann.

Denis - The COVID info guy -🇬🇧 UK: Charlotte, 34, from Rochdale, caught COVID in Dec 2022 and by Feb 2023 faced severe, life-changing symptoms. A second-year psychology student at the time, she now needs a full-time carer and can only leave bed to bathe or use the toilet. She suffers from around 30 conditions, including early-onset dementia, extreme fatigue, severe body aches, rapid heart rate, and breathing difficulties.Source: <a href="https://archive.md/rqCAQ" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://archive.md/rqCAQ</a><a href="https://a.gup.pe/u/auscovid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@auscovid19</a> <a href="https://aus.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCOVID</a>

Science for MEOur latest News in Brief post has headlines and links to further reading for <a href="https://med-mastodon.com/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>, <a href="https://med-mastodon.com/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a>, and related news, advocacy and research for the week of April 21 - 27.Topics: News, advocacy and articles Coming events Research news and commentary & Published research<a href="https://www.s4me.info/threads/news-in-brief-april-2025.43486/#post-605047" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.s4me.info/threads/news-in-brief-april-2025.43486/#post-605047</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

PöbelHörnchenShort version for non-German speakers:Had great success with an experimental intervention for <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> / <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>, using small continuous doses of transdermal nicotine (i.e. nicotine patches). There's some science behind it, and <a href="https://disabled.social/tags/ItWorkedForMe" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ItWorkedForMe</a> 🤷🏻Read more here: <a href="https://docs.google.com/document/d/1j6q7i0fYlMSCen87zaerh54SGc-jSM8TE6MbcKOl7dk/mobilebasic" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://docs.google.com/document/d/1j6q7i0fYlMSCen87zaerh54SGc-jSM8TE6MbcKOl7dk/mobilebasic</a>for context: improved my Bell Score from 20-40 to 40-60 (SIGNIFICANT quality of life improvement from "near suicidal" to "I could deal with this") and stayed improved after discontinuation of wearing patches.

PöbelHörnchenMeine <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>-peepz, horchet! Ich habe mich mal wieder heldenhaft in ein n=1 Experiment geworfen und was soll ich sagen… es wirkt [bei mir, bei weiteren Bekannten, n=1 mal X Menschen] über den Placebo-Effekt hinaus.Und nicht nur sofort, ab der kleinsten Dosis (0,583… mg auf 16 h), ungefähr linear besser werdend mit höherer Dosis, sondern es hält auch nach dem (unfreiwillig plötzlichen) Absetzen an.WTF. (color me impressed)<a href="https://disabled.social/tags/Nikotin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Nikotin</a> transdermal gegen <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a>: <a href="https://docs.google.com/document/d/1j6q7i0fYlMSCen87zaerh54SGc-jSM8TE6MbcKOl7dk/mobilebasic" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://docs.google.com/document/d/1j6q7i0fYlMSCen87zaerh54SGc-jSM8TE6MbcKOl7dk/mobilebasic</a>

Bernd Paysan R.I.P Natenom 🕯️<a href="https://mastodon.social/@rotnroll666" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@rotnroll666</a> <a href="https://mastodon.social/@ennopark" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@ennopark</a> Mich erinnert das alles an meine Zivi-Zeit, während der sich binnen weniger Monate die Erkenntnis durchsetzte, dass Magengeschwüre durch Helicobacter pylori (<a href="https://de.wikipedia.org/wiki/Helicobacter_pylori" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://de.wikipedia.org/wiki/Helicobacter_pylori</a>) erzeugt werden, und allenfalls schwach mit Stress korreliert waren. Die Veröffentlichung dazu war da schon einige Jahre alt, aber die Mediziner sind träge, und halten gern an etabliertem „Wissen“ fest.ME/CFS ist eine chronische Entzündung des Gehirns, keine psychische Erkrankung, sondern eine organische (ja, das Gehirn ist auch ein Organ!), und die Schwierigkeiten bei <a href="https://mastodon.net2o.de/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCOVID</a> liegen wohl insbesondere darin, dass das sowohl selbst das Hirn persistent infizieren kann, als auch durch Schwächung des Immunsystems anderen bereits persistenten Viren (z.B. aus der Herpes-Familie) ermöglicht, dort ihr Unwesen zu treiben.

Anti. 🐘Büsser: "Bei der Anti-Weidel-Demo gab es einen krassen Widerspruch. Die Linken demonstrieren gegen eine Person aus der LGBTQ-Community, die Rechten für sie. Noch dazu für eine Ausländerin. Eine Traum-Prämisse für Comedy. [...] Speziell daran war, dass hier Figuren aus der Corona-Zeit auftauchten, die eine ganz spezielle [sic] Form von <a href="https://chaos.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCOVID</a> haben. Die leben immer noch in jener Zeit, haben nicht damit abgeschlossen. [...] Das ist der Brainfog, die sind noch drin gefangen."Witz komm raus

Maggie MaybeI remember seeing people pushing brain retraining on <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> patients on some platform years ago.I guess I shouldn’t be surprised to see this scam is back targeted at long Covid patients. It’s garbage, just like GET. <a href="https://zeroes.ca/tags/BrainRetraining" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BrainRetraining</a> Scams are ramping up in recent months - Sisters and Brothers in Long Haul please remain Vigilant : r/covidlonghaulers <a href="https://www.reddit.com/r/covidlonghaulers/comments/1k91smx/brain_retraining_scams_are_ramping_up_in_recent/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.reddit.com/r/covidlonghaulers/comments/1k91smx/brain_retraining_scams_are_ramping_up_in_recent/</a> <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a>

MedSciPol<a href="https://www.cbc.ca/news/canada/hamilton/hamilton-mcmaster-university-post-covid-19-guidelines-1.7494976" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.cbc.ca/news/canada/hamilton/hamilton-mcmaster-university-post-covid-19-guidelines-1.7494976</a> "Researchers at McMaster University say they've created Canada's first-ever comprehensive guidelines for diagnosing, managing, preventing, and treating post COVID-19 condition (PCC), more commonly known as long COVID."<a href="https://canpcc.ca/home/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://canpcc.ca/home/</a> mit Infos für Die Öffentlichkeit: <a href="https://canpcc.ca/resources/#tab-content-patients-and-general-public" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://canpcc.ca/resources/#tab-content-patients-and-general-public</a>Medizinisches Fachpersonal: <a href="https://canpcc.ca/resources/#tab-content-ov" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://canpcc.ca/resources/#tab-content-ov</a>Und für Menschen in politischer Entscheidungsverantwortung: <a href="https://canpcc.ca/resources/policymakers/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://canpcc.ca/resources/policymakers/</a><a href="https://det.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://det.social/tags/PostCovidCondition" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostCovidCondition</a>

floDa schaue ich ein Video, in dem der Sprecher erwähnt, dass sich als Folge seiner COVID-Infektion wohl eine Beinvenenthrombose entwickelt hat, die er behandeln ließ. Passiert das nicht (bspw. weil sie zu spät erkannt wird), kann das zu einer Lungenembolie, und damit mit hoher Wahrscheinlichkeit zum Tod führen! Ich sollte da mal bei meinem Hausarzt was prüfen lassen ... /o\ (was seltsam ist, weil ich denke, keine Risikofaktoren zu haben, wie zB zu wenig Bewegung, dank täglich vier Hunderunden) Beinvenenthrombose: <a href="https://www.medi.de/diagnose-therapie/thrombose/beinvenenthrombose/" rel="nofollow noopener noreferrer" target="_blank">www.medi.de/diagnose-therapie/thrombose/beinvenenthrombose/</a> Video: "UPDATE! Mir geht's gerade echt nicht gut! | Vlog" <a href="https://yewtu.be/watch?v=TP933jBnclw" rel="nofollow noopener noreferrer" target="_blank">yewtu.be/watch?v=TP933jBnclw</a> (<a href="https://youtu.be/TP933jBnclw" rel="nofollow noopener noreferrer" target="_blank">youtu.be/TP933jBnclw</a>) <a href="https://iceshrimp.de/tags/Covid" rel="nofollow noopener noreferrer" target="_blank">#Covid</a> <a href="https://iceshrimp.de/tags/LongCovid" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://iceshrimp.de/tags/Thrombose" rel="nofollow noopener noreferrer" target="_blank">#Thrombose</a> <a href="https://iceshrimp.de/tags/Beinvenenthrombose" rel="nofollow noopener noreferrer" target="_blank">#Beinvenenthrombose</a> <a href="https://iceshrimp.de/tags/Gesundheit" rel="nofollow noopener noreferrer" target="_blank">#Gesundheit</a>

Science4ME News BotScience for ME: News in Brief 21 - 27 Apr 2025This week's research articles, media items, advocacy and other news relating to <a href="https://mas.to/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> and <a href="https://mas.to/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a><a href="https://www.s4me.info/threads/news-in-brief-april-2025.43486/#post-605047" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.s4me.info/threads/news-in-brief-april-2025.43486/#post-605047</a>

tagesschauLong Covid: Viele Wege zur GenesungFünf Jahre nach dem ersten Corona-Fall in Deutschland gibt es noch kein zugelassenes Medikament gegen die Langzeitfolgen der Erkrankung. Aber es gibt viele Ansätze und Menschen, die gesund geworden sind. Von Karin König.➡️ <a href="https://www.tagesschau.de/wissen/gesundheit/long-covid-genesung-100.html?at_medium=mastodon&at_campaign=tagesschau.de" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.tagesschau.de/wissen/gesundheit/long-covid-genesung-100.html?at_medium=mastodon&at_campaign=tagesschau.de</a><a href="https://ard.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://ard.social/tags/Forschung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Forschung</a> <a href="https://ard.social/tags/Genesung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Genesung</a>

conscientious objector🇨🇭🪂Das <a href="https://swiss.social/tags/Corona" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Corona</a> Grundrauschen ist eine Inzidenz von 200. Wisst ihr noch als 25 Risikogebiet war? <a href="https://swiss.social/@dominiksteiger/114405562901855424" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://swiss.social/@dominiksteiger/114405562901855424</a><a href="https://swiss.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> trifft weiterhin jeden 10 Infizierten. <a href="https://swiss.social/tags/Krankenstand" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Krankenstand</a> <a href="https://swiss.social/tags/Geburtenrate" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Geburtenrate</a>

BroadwaybabytoWhen you’re healthy you believe you’ll always be healthy. That if you get sick it’ll be a temporary slow down & you will be back to normal after a few days.When you learn that isn’t true, when you come face to face with the reality of how quickly you can lose your health, you become cautious.This caution is part of protecting your baseline, and it’s a necessary survival skill when chronically ill. <a href="https://www.disabledginger.com/p/maintaining-a-baseline-means-everything" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.disabledginger.com/p/maintaining-a-baseline-means-everything</a><a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longcovid</a> <a href="https://zeroes.ca/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://zeroes.ca/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pots</a> <a href="https://zeroes.ca/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#eds</a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disability</a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ableism</a> <a href="https://zeroes.ca/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#health</a>

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